Daniel is very sarcastic and funny. He lights up the room with good conversation and a well placed sarcastic comment. He loves robotics and biology, legos, drawing, and video games. He misses having friends and normalcy.
Daniel was diagnosed with Acute Lymphoblastic Leukemia in September of 2018. Swelling from a cut in Daniel’s mouth from his braces eventually led to his diagnosis. Nothing too odd or crazy, we just thought maybe it was an infection when it didn’t resolve after a few days.
Daniel has had more chemotherapy than I can count along with spinal taps, biopsies, blood transfusions, physical and occupational therapy. Daniel’s mobility issues keep him from being a normal teen. He has missed his entire junior year of high school. He also has neuropathy and has trouble walking due to chemotherapy.
Treatment has taken its physical toll but has drained all of us physically, emotionally, and financially.
Gracelynn loves everything and everyone around her. She loves pets, especially cats. She also loves Disney’s Little Mermaid, anything Frozen, Hello Kitty and, Paw Patrol.
In Agust of 2017, at a routine wellness check for her 2nd birthday, Gracelynn’s pediatrician thought she looked pale and took some labs. We were told to go to the emergency room that night which eventually led to a diagnosis of Acute Lymphoblastic Leukemia.
Since her diagnosis she has endured taking home chemo meds, countless lumbar punctures, bone marrow aspirates, PTSD, insomnia and stress. Through everything, Gracelynn is still as happy as can be.
Cancer has changed many things in our lives; we try to get as much family time together and cherish every moment.
Remi was diagnosed with Leukemia in April of 2017. She was 15 months old. She had fevers but I thought it was due to teething. She was slowly getting more and more tired. One day, she wouldn’t even move off the couch and had a yellow tint. I took her to the doctor and they did all sorts of tests and were thinking it was her liver. But then gave us the horrible “cancer” word.
We’ve had blood transfusions, several lumbar punctures and just the regular chemo treatments.
She is a spunky sassy little thing. But she’s been through hell so we love letting her be in charge. She’s also the sweetest and loves to cuddle.
Bryce was diagnosed with Leukemia on his 5th birthday. He had strep throat wouldn’t go away, leg pain, and random fevers that kept coming back.
Ten momths into chemo he was in a accident and burned on 27% of his body. He is the only child or adult in the us to be on chemo and be burned on 27% of his body. They didn’t know what was going to happen or if he was going to survive.
It is always a scare and in the back of our minds about relapse.
Zofia was diagnosed exactly 3 years ago with Leukemia. She has been in remission since then and we finished the chemo treatment last year in October.
She had chemo infusions into her port and shots into her spine. She also had several blood transfusions and other infusions.
Zosha (her nickname) has Down Syndrome and is 4.5 years old. She lost her hair 4 times and finally it grew back long enough for nice pictures. We are so happy to be celebrating that fact.
Kourtney is a huge animal lover! Horses are her favorite, and she enjoys horseback riding at least a couple times a week. Almost all of the clothes she picks out have horses/unicorns on them. She also loves to go swimming when possible! I have no doubt that when she is done with treatment and gets the a-ok from her doctor, she will be a very outdoorsy kind of girl!
When she was 5 1/2 months old, Kourtney was diagnosed with Leukemia. She was the picture of health, with the exception of petechiae on her legs. She had absolutely no other cancer symptoms, and was a very happy baby.
Cancer changed so much for our family. We had to move to Seattle, while Kourtney was inpatient for 8 months. Then moved 6 hours away to a different city (Spokane), because we couldn’t afford Seattle.
Kourtney has been in treatment for nearly two years, and is currently at the end of long term maintenance. She has had many, many LP and BMA, plus three surgeries. There are definitely struggles, the main one being that Kourtney cannot go out in public most of the time. It makes it difficult to be able to expose her to new environments and new people.
