Meet Teddy – Wilms Tumor
Teddy started wetting the bed, which was very odd for him, even as a 4-year-old. That graduated to severe nightly stomach pains. He had some constipation, so we chalked it up to that. When things didn't improve I brought Teddy to the ER at Lurie's Children's hospital...
Meet Remsen – Neuroblastoma
Remy had discoloration on his upper eyelid that turned into “raccoon eyes” which is a telltale sign of Neuroblastoma. He was less than one when he was diagnosed. He is severely immunocompromised due to chemotherapy. He has to be in a very clean environment with no...
Meet Jackson – Acute Myeloid Leukemia
Jackson was diagnosed with AML on January 20, 2021. Leading up to his diagnosis he had bad nose bleeds that could not be stopped and severe pain in his legs. After diagnosis, we were airlifted to St.Judes. Because of Covid, we are separated by five hours of driving....
Meet Eliana – Acute Lymphoblastic Leukemia
In the spring of 2018, Eliana was complaining of leg/hip pain and by the end of the day, she was limping. We knew we had to act quickly and rushed her to the ER. That night she was diagnosed with transient synovitis. We followed up with her primary care physician who...
Meet Amanda – Acute Myeloid Leukemia
Amanda was diagnosed with AML in Sept 2020. She was treated with chemotherapy in the fall and received a Bone Marrow Transplant on December 31st. She was just discharged end of Feb from the hospital and will going outpatient with the BMT team for the first year, then...
Meet Lyla – Retinoblastoma
Lyla was diagnosed with (non-hereditary, unilateral) Retinoblastoma at just 10 weeks old. Her father and I noticed a sort of glow in her right eye and knew something was off. We took her to the pediatrician who noticed there was no red reflex present in her right eye...
Photographer Spotlight – Baby Face Photography
This month we are so excited to be shining our photographer spotlight on Alyssa of Baby Face Photography. Alyssa's journey of photography began watching two little girls grow and wanting to capture each little moment and detail. As the...
Meet Gianni – Neuroblastoma
Gigi is a sweetheart. She enjoys laying and exploring. She absolutely loves her big sister with who she shares the same birthday.Before diagnosis with Neuroblastoma, GiGi had wheezing early in the day along with a fever. We called the virtual health line to speak with...
Meet Alexa – Acute Lymphoblastic Leukemia
Alexa was diagnosed with ALL in December of 2018. We were on a trip to visit family in Mexico. She had a fever a few weeks before, we got concerned so we took her to the ER but they told us it could be an infection. We were sent home with antibiotics. While in Mexico,...
Meet Braelyn – Acute Myeloid Leukemia
Braelyn was diagnosed with AML on May 30, 2020. She was misdiagnosed with Bell’s Palsy due to right side facial paralysis, Then she just got sicker and I knew something wasn’t right so I took her into the ER. Braelyn spent her first 13 days on a ventilator and 37 days...
Meet Michael – Fanconi Anemia
Michael's journey began in February 2016 with his diagnosis of AML. He fought it then and now he will fight it again. He has relapsed on June 8, 2018, but the AML has mutated to a different variation called APML. Michael will be going through a bone marrow transplant...
Meet Atlas – Acute Lymphoma Leukemia
In the Fall of 2019, Atlas began exhibiting a variety of symptoms and his behavior also seemed off. Nothing seemed to make sense or point to anything specific. It did not help that we were entering the onset of COVID-19 when doctors were using telemedicine more and...