Gigi is a sweetheart. She enjoys laying and exploring. She absolutely loves her big sister with who she shares the same birthday.

Before diagnosis with Neuroblastoma, GiGi had wheezing early in the day along with a fever. We called the virtual health line to speak with a nurse and eventually a physician. We had a video conference with the physician. She then recommended that we go to the pharmacy for Pedialyte and then go to the children’s urgent care. I asked that she hold on as I was gathering more information from our nanny that cares for GiGi and her sister during the day. While she was on hold, she had an opportunity to watch her breathing pattern better. After I came back to the call she advised me to skip the pharmacy and urgent care and to go straight to the ER instead.

Once we arrived at the ER, the team suspected she had a respiratory process occurring due to her labored breathing. I just so happened to mention the size of her stomach to one of the nurses. An abdominal ultrasound and X-ray were ordered. It was the ultrasound that detected her tumors. It was the belief this day was divinely orchestrated.

She cannot enjoy her infancy as much as we would like her to. Can’t play in the water or take a bath because of her Hickman line, can’t enjoy the company of others because of the risk of infection.

We give thanks too though because we know that her situation could be even worse.

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