Lily loves to dance and sing. She brings joy to everyone around her.

Around 5 months we noticed that her eyes started wiggling back and forth, MRI was done and showed that she had bilateral tumors on her optic nerves. She has been through 6 chemotherapies and 1 clinical trail. Due to the tumors being on Lily’s optic nerve, she suffers from low vision. We are hopeful to find a treatment to stop the tumor from growing.

Lily started her first treatment at 7 months of age. She has spent most of her life on chemotherapies and most recently a clinical trial. It is both an emotional and financial stress on our family. Lily has 3 older brothers and it can be most difficult for them.Much of our focus has been on getting her well and it makes it difficult to focus on her brothers. The financial and emotional burdens of this disease are difficult.

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