Since William was born he has always been daring and adventurous. We didn’t realize until he turned 1! At one, he was alway son the go trying out the bed and learning how to sky dive off of it. Same with the couch. He stays on the go and we had many heart attacks as he was a growing toddler. There is no halfway for William when t comes to adventure.
By the age of two, he knew how to express himself. He has always been so truthful. He may not say it but he wold act out the truth. He acts out what we all feel. He doesn’t hold back on his feelings. He’s very caring. If someone hurts, he wants to make them better.
He was diagnosed February 20, 2017 with Rhabdomyosarcoma and Neurofibromatosis. He has completed radiation and was on two different chemo treatments. We are hoping for a miracle and pray over our son daily. The odds just aren’t looking good and each day his prognosis worsens.
We received results last week on his last scan. His tumor has shrunk half a centimeter. That’s great but eventually his tumor is going to keep growing. The chemo is not working like they or we hoped for. He has had multiple bacterial infections which they believe could possibly be coming from his tumor so it’s a very smart type of bacteria which is only becoming more resistant to the antibiotics. There were only 2 cycles left of his chemo treatment but it would only prolong the inevitable and suffering. Me and Chris stand firm in our decision that it was best to stop treatment because we see how much William has suffered and he does not to any longer.
William will be coming home and be made comfortable. To be with his siblings family and friends. We have tried everything. We have looked in to things but there is nothing for Williams type of cancer and in the location the tumor presents it’s self. My heart is broken… in so many little pieces I’m empty.. God is still giving me strength to push through… He still shines that light of encouragement… but as a mother, as a human my heart is shattered. I have nothing left in me. Just hurt. For two days he has been playful. So we are taking every moment we can in.
I am encouraged and at peace with our son. Please know that we have trusted in God. We have put everything in His hands. Yes we have gotten mad. Yes we have asked why, with our fist up. But ultimately we surrendered everything over to God. My son has won his battle against cancer. Trust me when I say that. Please know that if you prayed for peace, comfort, a miracle, or something it is happening. A miracle will be when my son can be with our almighty Father. That everlasting life and everlasting freedom! Yes I still hurt but I stay encouraged with Gods word. I’m not selfish. I have had my son dedicated to God and I’ve surrendered William to God. I’ve never understood how someone can be so hurt and have their heart broken into a million pieces but also feel encouraged, until now. My son. My hero. My real Superman.
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