Savi loves all things Moana and Kung Fu Panda at the moment! She loves to play outside with her big brother and dance to the “Everything is Awesome” LEGO movie song. At 2 years old her attention span is very short and we call her hurricane Savi as she loves to make big messes around the house. She’s also such a chatterbox and loves interacting with other kids!
Savi was diagnosed with high-risk neuroblastoma in late March 2019. I noticed that she had frequent belly aches and seemed so irritable throughout the day. During bedtime, I would rub her belly and that made her feel better. Her appetite also took a hit and decreased tremendously the week before she was diagnosed. Her pediatrician felt the tumor during her 18-month visit.
So far, she’s undergone 5 cycles of chemo, 1 MIBG therapy session, and the tumor resection surgery. I feel like I hold my breath throughout each step of her treatment and I despise the aftermath she has to endure. It hurts my heart to watch her suffer and I wish they could transfer it to me instead. But here we are done with phase 1 out of 3 of her treatment plan.
Our lives have been turned upside down since the diagnosis. So much anxiety and depression we’ve had to go through. We now never take our time as a family for granted and try to live the days when she’s feeling good to the fullest.
She is such a fighter, all I can hope is that she keeps on fighting and we will be right beside her in every step.
Hope session by Carla McElroy Photography | Facebook | Instagram