Ryent is a sweet and happy boy. He LOVES sports and physical play. He loves to play catch with our dog, Copper and go to the park. We call him our superman. He also loves Mickey Mouse and Toy Story guys. Ryent has a special blanket “Gaga” that we wrap around him like a cape when he needs a break. He is shy at first but warms up and is your best friend. When we go out in public Ryent is the kid who says hi to the guy sweeping the floor or stocking the bathroom. He always finds the people who look sad and asks “ok?”
Ryent was diagnosed with B Cell Acute Lymphoblastic Leukemia on May 25th, 2021 when he was 15 months old. He had started in a toddler program in March of 2021. At first we thought he was tired from school but we began noticing bruising an immobile child shouldn’t have. He was also pale and extremely fatigued. He hit his head (lightly) on May 24th resulting in a large goose egg that shouldn’t have even bruised and we decided the next day to bring him to the ER at Childrens Minnesota. We could tell the doctor was very concerned right away and they took blood. Forty five minutes later they came in and told us our son had Leukemia.
Ryent has been through many kinds of chemo, both IV and oral. He has had five blood transfusions and three platelet transfusions. He had e coli and c-diff infections along with staph and pneumonia. He has overcome motor skill delays and is working hard to catch up to his peers. We still keep our distance from large gatherings and he is not allowed to go in lakes or petting zoos. He is very curious and will love to explore more post treatment.
We have learned to take every moment in and take nothing for granted. We celebrate every little victory and give praise for even a small win. We appreciate little things and let the negative go. One thing I have said a lot is that if the hardest part of your day is something trivial you are blessed.
Last July we discovered that Ryent also has Noonan’s Syndrome. His fight for his health is long from over as we will be working on those challenges at the end of his treatment on August 5th.
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