Raifeartaigh was diagnosed with hereditary retinoblastoma on 02/28/2024. We were out to eat on 02/25/2024 and I saw the spot behind his pupil and immediately knew what it was. We left the restaurant and went to the ER for confirmation. Our son was in to see an ophthalmologist on 02/26. He was in Miami on 02/28 and got formally diagnosed and he lost his left eye on 03/01. Currently going through chemo for tumors in his other eye.

He has had an eye removal and chemo. For every treatment and exam, he is sedated. There are many struggles in this ever-evolving situation.

Every aspect of life has changed. We have emotional struggles and financial struggles. We try to ensure we stay as healthy as we can ourselves, remembering to eat, sleepless nights, and overwhelming days, and second-guessing our decisions in regards to healthcare decisions.

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