Nora was an energetic 2.5-year-old girl that loved playing around but over just a few short days she began to have balance issues and mild intermittent tremors throughout her whole body. She soon lost most gross motor skills and then her fine motor skills; in which she wasn’t even able to sit up under her own power at all. After multiple appointments with different doctors, Nora was finally admitted to the hospital where she was diagnosed with Neuroblastoma after several scans. In addition, she was diagnosed with Opsoclonus Myoclonus Ataxia.
Nora currently does not have any limitations due to her diagnosis. She did acquire Opsoclonus Myoclonus Ataxia, a neurological condition, because of the cancer though so we have to be very strict with germ management. The times that we do activities out in public with Nora we are very diligent with sanitizing everything before she plays with it.
Nora’s cancer diagnosis has definitely changed our family life. While we truly try to cherish every single moment that we are able to have with Nora now we as parents also sadly live with a high level of anxiety. We pray that Nora’s cancer does not relapse. It’s been so tough not being able to see Nora live the normal life that a toddler should be living. She shouldn’t have to go to the infusion center and doctor all of the time for treatments. Nora has been a trooper though and has been so strong through this process!
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