One day, Myles showed me his belly. He had a bunch of tiny red dots under his skin. I took him to the pediatrician and they were unaware of what this was. They had never seen this before. I became worried when they had another doctor come in to take a look. They took a bunch of blood. They stated that they will get back to us in a few days. His platelets were at 0 and his hemoglobin was at 8.4 and his white blood count was at 135. He was immediately removed from school and we were transferred to St. Vincent’s in Green Bay.
We were admitted to the PICU. Here they did a bone marrow biopsy and we received the diagnosis of Severe Aplastic Anemia. Our doctor there referred us to Milwaukee Children’s Hospital to see a specialist. This is a extremely rare disease. It is not cancer but close and the treatments are very similar.
Myles has had chemotherapy to wipe out his cells to prepare for the bone marrow transplant. His bone marrow transplant was on June 5th. He is doing well. Still platelet and hemoglobin dependent. Hoping for engraftment soon!
Myles is unable to attend school. He can not leave the house. He can not play baseball or even ride his bike. Not digging for bugs. His low counts and severe neutropenia don’t allow his to do much. Hoping for the bone marrow transplant to work and he can be back to the boy he once was!
Myles is so strong. He inspires me everyday. I am upset this has happened to us however at the same time I am grateful. This has brought us as a family closer. Closer to each other and closer to our faith. This is by far the hardest thing we have been through as a family and I know we will one day look back at this and smile. Because we did it!!
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