Melody is a very smart and mature for her age. She is silly, creative, and brave. Things that make her smile are anything that is silly from dances to jokes. She definitely loves arts and crafts, playing games on her iPad ( mainly Roblox), watching movies, playing with her sister, anything to do with Pokemon, shopping, and eating with family.
Melody was diagnosed with spinal cord anaplastic ependymoma (grade 3 tumor) in February of 2021. She started having leg pain and losing function and sensation for almost a year before her diagnosis.
She has had surgery twice, had proton radiation, and is now in a clinical trial. The most struggles we’ve had are not having normality in life, watching Melody struggle and be in pain, and the financial burden. For the time being, Melody is unable to walk and requires the use of a wheelchair.
This has been a great struggle both physically and mentally. Though I know that Melody is going through more than I am she is so much stronger than me and my wife. She has taught us a lesson about being more courageous and more faithful to God. Also, it has changed our perspective in life to know that everyone has their own struggles that they are trying to hide such as us.
Because Melody is too smart for her own good she has very deep thoughts. She has questions that I can’t answer though she has great faith in God. Through her hard times after both surgeries she went through a trauma stage where she would wake up in the middle of the night crying. But through pain and resilience she has overcome many obstacles, more than many many people can ever imagine. In her good times, she is a pleasure and blessing to be around. She is very silly and loves to joke around, especially with those she feels comfortable with. She is loving and caring towards me, my wife, and her little sister that she loves dearly. She will always be my Sweet Melody!
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