Malakai is so funny and silly. He has the best attitude towards life and having fun. He is usually wiping my tears telling me everything will be ok. He loves video games and playing with his cousin and friends.
Malakai was diagnosed with ALL in 2019. He has an extremely aggressive subtype and did not respond to Induction chemo. He went on to have his first bone marrow transplant in 2019 from his baby brother. His baby brother was only one year old at the time. In 2021 he relapsed and then had another bone marrow transplant from his father. We have had to live away from home for months at a time with hospital admissions that lasted as long as 3 months. We just found out he has relapsed again in September 2022. We are now looking into a clinical trial for CART-t therapy.
Before Malakai was diagnosed, he was experiencing bone pain, fevers, and petechia. My gut knew something was wrong. After multiple doctor appointments and ER visits, he was finally diagnosed.
Malakai has been in treatment on and off since 2019. My husband and I have barely kept it together. One of us had to constantly stop working. This has been extremely hard for his brother and financially as a family.
Hope Session by Susie Garrido Photography | Instagram