Lola is a brave, strong and funny teen. She loves making people laugh with her potty humor (not bad words) and enjoys spending time at our church and her church friends. They give her great peace when they pray over her. Lola is in pain daily but you would never know it, she always has a smile for others.
When Lola was 9, she began having back and knee pain and was misdiagnosed and treated with juvenile arthritis for 2 years. She began having numbness in her right side and difficulty walking which led to an MRI and the cancer diagnoses of Ependymoma.
Lola has received several months of chemo, 2 different rounds of radiation and this most recent was in a trial medication but was taken off because of tumor progression. She has had so many MRI’s I’ve lost count.
Our family struggles with the constant worry of Lola’s cancer taking over. We don’t have time for our marriage or out other children.
As of January this year there has been quite a bit of tumor progression and Lola is now paralyzed from mid waste down. So she is now in a wheelchair and unable to walk. It’s been a difficult transition and I am now her 24 hr caregiver. We all do our best to keep her spirits up and positive.
Hope session by Pagette Callender Photography | Facebook