Lilly loves the color purple, glitter, her brothers, and cooking. She has just started listening to Taylor Swift and playing with Legos at the hospital. She has gone from an outgoing, smiling little girl to a very reserved little girl. This has definitely changed how she approaches people and situations.
Lilly had reading problems in school and our pediatrician said that there was nothing wrong with her eyes, so she was diagnosed with ADD. I felt she didn’t have ADD.
We moved due to work and Lilly was swimming a lot in our transitional housing (hotel) when she was having headaches and fluid behind her ear. We went back to her old pediatrician and they said it was swimmer’s ear.
Once we got into our new house, Lilly was having headaches and mood changes. We took her to a new pediatrician and was told she had allergies. The medication didn’t work and Lilly’s eye starting turning in. We took her to the optometrist who said her issues were not eye related but something medically related.
We immediately took her to Phoenix Children’s Hospital and she was diagnosed with a brain tumor and hydrocephalus. This started our cancer journey and she has already had a recurrence of her tumor and a second brain surgery.
She has been such a strong little girl through so many procedures! Time is split between the hospital and home so Lilly and I have missed a lot of family time.
Hope session by Egan Eyes Photography | Facebook | Instagram