Jonathan is a happy, charismatic, silly, and energetic 5-year-old boy. He loves the Incredible Hulk, all things music (singing, piano, and guitar), coloring, drawing, Godzilla, and Batman.
In November of 2019, Jonathan started complaining of headaches, neck pain, and occasionally vomiting. Shortly after, he was diagnosed with the flu, so his complaints were warranted as symptoms of the flu. With little improvement, a CT scan on his second ER visit on January 13, 2020, revealed an excessive build-up of cerebral spinal fluid – hydrocephalus.
On January 14, 2020, an MRI revealed a brain tumor. Our family was in shock and soon after we sought expert care out of the state of Florida and journeyed to Children’s Hospital of Philadelphia (CHOP).
Since the journey began, Jonathan has endured 2 major brain surgeries to alleviate the fluid pressure. In March of 2020, Jonathan’s tumor was resected, and pathology confirmed Jonathan’s brain tumor was malignant and metastatic, (ATRT). Currently, he has undergone (5) rounds of Chemotherapy, (3) Stem Cell Transplants and in October he will undergo 6 weeks of Proton Radiation.
Our family life has certainly changed. We relocated to Philadelphia and are currently living in the Philadelphia Ronald McDonald House. We’ve been here since February of 2020. I had to resign from my position at work and my husband is not working. We are here with our 7-year-old daughter and my parents.
Hope session by Nancy Elizabeth Photography | Facebook | Instagram