Johan was diagnosed in January 2020. He woke up one day with high fevers and fatigue. Due to COVID, we were asked to wait it out before going to the doctor. Once he was seen, a scan was done and confirmed pneumonia. The scan also showed a large mass in his chest which was confirmed later to be Neuroblastoma.
We have learned to be precious with time and our family. We have had to adjust our schedules, or home environment, where we go, and what we are able to do because of COVID exposures and Johan’s compromised immune system.
Johan has been through 18 rounds of chemo. Our son is on hospice care now. He has battled his cancer for over a year and unfortunately, his cancer keeps coming back.
Hope session by Brandy Yi Photography | Facebook