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We found out that Jaxon had a tumor May 3, 2017. After falling and hitting his head, the tumor was revealed on a ct scan. After two brain surgeries to remove the tumor it was determined that Jaxon had a rare brain cancer called Metastatic Ependymoma. Only 200 cases of this type of tumor are diagnosed each year.

Jaxon also had two more surgeries to put a in a shunt due to hydrocephalus and a port to use for treatments. Jaxon has been undergoing chemotherapy for the past year and will be receiving proton radiation in Mass General in Boston this month.

Jaxon has been a warrior through it all and he keeps a smile on his face. Since Jaxon’s diagnosis I have not been able to return to work because of the rigorous schedule of treatment. I appreciate the beautiful photos that were taken through this amazing organization it was a really special time for all of us.

Hope session by Alexandra Sullivan Photography | Facebook | Instagram

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