Isabella is incredible! She loves music, dancing, everything Disney! She is social, loves to walk the halls in the hospital saying hi to everyone. She really has a magnetic personality. She is smart, witty and beautiful.
When she was 17 months old she started to lose her balance and was vomiting. She was diagnosed with a rare and aggressive brain tumor called Atypical Teratoid/Rhabdoid Tumor or AT/RT. She has surgery, 30 rounds of radiation and is currently on round 12 of chemo with 3 more to go.
We don’t have a lot of “good days” with Isabella so the few we do we try and take advantage of them as much as possible. We spend a lot of time in te hospital. The fear and stress can be overwhelming. We’ve lost friends and we’ve gained friends. This has restored my belief in humanity though. People have been very generous and caring.
Last month we started a new chapter in this journey. This chapter is about recovery (physical and emotional). It’s about gratitude, healing, love and family. A ton of bricks were lifted off my shoulders. A weight that has laid heavily on me for the past year. We are off of treatment, Isabella is NED and scans are clean! No mysterious spots or anything suspicious. God is good. Today we breathe a sign a relief. We breathe hope. We know we will never be in the clear, we know how quickly things can change and we know this cancer can always, at any point, come back. We also know that we are living today, THIS special moment. It’s time to celebrate and LIVE!
Hope session by Jennifer Inigo Photography | Facebook | Instagram