Henry’s personality is the best one I know. He is funny, loving, determined, and outgoing. What makes him laugh is joking around, but be careful he jokes right back. He has the greatest laugh of all too!
He was diagnosed with AT/RT on June 13, 2018 after persistent vomiting as well as some changes in his gait. Since being diagnosed with a brain tumor he has been put through surgery, which he had some side effects from the removal of the tumor. Such as balance or gross motor skills, because of the location. He does see double now as well as a result of the surgery, his right eye is directed inward.
Our family did struggle with adjusting to this new way of life. But we got help with medication for our anxiety/depression, got a hold of our emotions and pushed through the hardest days. I did have to temporarily leave my job to stay with him in the hospital while my husband worked, so that was definitely a strain not being able to go home at night. Now that he has been taking oral chemo we can do that in the comfort of our home.
Henry is a champion and has amazed both his Dad and I with all that he has been through and still has a smile on his face. Very seldom did he have a bad day in the hospital or at all for that matter. He is the brightest light in the middle of the dark.
Hope session by Nikki Cashen Photography | Facebook | Instagram