Faith was sick for a long time before diagnosis. She constantly had respiratory issues, abdominal pain, and random swelling in her body. She had constant ear infections and pains that were not explained. I went to different doctors, and she progressively got worse. Finally, after two weeks of ER visits, I had enough. Faith has a swollen lip, ear infection, and gastro infection and was fighting a virus all at the same time. I went to a different hospital outside the city and told them something was wrong and needed their help. They ran a blood test, and we found out the next day.
Faith has had surgery to put in a venous port; it’s connected directly to her heart for the treatment. She has had about 12 lumbar punctures (chemo through her spinal fluid after they collect some of the liquid for cancer).
I can no longer work because Faith is high risk, and I do not want to risk her becoming more ill from viruses and the potential for them to be life-threatening. My church raised some money to help me financially for the time being. Her father left for a while after discovering the news. He has left us on this journey alone. My parents and sisters have become closer and very helpful during this time.
Hope session by Jessie Hearn Photography | Facebook | Instagram