Everleigh is a spitfire! She is tough and so incredibly smart. Every time the doctors would expect her to be knocked down she proved them wrong. Treatment was fairly easy for her, she had very few complications. She loves all the attention. She knows exactly what she wants and has so much attitude. She is a mommas girl for sure! She loves books, and playing with anything that lights up!
On February 25th of 2020, Everleigh was diagnosed with infant Acute Lymphoblastic Leukemia. A week before diagnosis, Everleigh was lethargic and vomiting. Her dad and I took her to the emergency room and we were told she was constipated and was discharged. A couple of days later she was still not eating well and vomiting frequently so we took her back to the emergency room and they now said she had a UTI and we were sent home again. On the morning of February 24th, she woke up with blue lips and puffy eyes so I called 911 thinking she was having an allergic reaction. We were transported by ambulance to the hospital and they began running tests. The doctors agreed it was an allergic reaction and sent us home. About 15 minutes into our drive, the doctor called and asked us to come back because her WBC was a little bit elevated and they wanted to draw more labs. Her father and I were thinking “well she has a UTI, so that doesn’t seem unusual for a slight elevation”. After returning back to the hospital we were told her blood maxed out the machine at 440,000 WBC and that she needed to be transported to Children’s in Atlanta. Once arriving she was diagnosed with ALL and had a white blood cell count of over 1.6 million!
Everleigh has had lumbar punctures, bone marrow biopsies, several blood product transfusions, a bone marrow transplant, and many other things. She was treated for ALL and after treatment, her bone marrow was tested and we found out she had AML. She was then treated for AML and hit remission. We then moved to transplant.
We have struggled financially, and a little bit mentally/emotionally. It’s hard to watch your child fight cancer and not be able to help them! We currently are inpatient 4 hours from home. Due to COVID restrictions, we haven’t been allowed, visitors. We have missed many family holidays/birthdays, and just quality time. We have been in the hospital for a total of 101 days since February 25th.
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