Emmett is hilarious. Hi is usually smiling, and just a warm person. He gives the best hugs, has sweet dimples and gives winks to his nurses. He has the sweetest giggle. He loves hot wheels, paw patrol, Cars, and Blaze the monster machines.
We went in for his two year check up at the doctor. He was severely anemic and hadn’t gained any weight in 6 months. He had been lethargic and crabby. Testing revealed he had Neuroblastoma. Then over the course of a month, his tumor grew way bigger. And he wasn’t sleeping. He needed to be held constantly and had a hard time breathing.
He went through 3 rounds of chemo, 1 (16) hour surgery & 2 (5) hour surgeries to remove the tumor the size of a cantaloupe out of his belly. His stomach was open for a month and he was intubated. He also had one kidney removed. He was in ICU for 16 weeks straight. He then did dialysis and 5 rounds of immunotherapy. Now we are moving on to stem cell transplant.
Emmett is so brave. And so quick to recover from everything that happens. As soon as even a dressing change is over (he absolutely hates them) he sits up and says thank you to the people who did the change and gives hugs. He knows no one wants to be doing anything to him and he makes sure to say thank you because he knows it helps.
His siblings and dad are still in Alaska while Emmett and I are in Seattle. We have been here for 8 months and are going to be here at least 8 more. Travel back and forth to Seattle for his dad and the kids is so expensive so the visits are far apart.
Hope session by Amanda Orleman Photography | Facebook | Instagram