In the fall of 2020, Deklyn was having leg pain and fainting spells. This led to visiting numerous specialists who brushed off his symptoms. I finally called an integrative doctor I met after I was hit as a pedestrian by a commercial vehicle. The receptionist squeezed us in for an appointment the next week. Later that afternoon, she called back and was like something is saying you need to be seen today and she moved appointments around for him to be seen. Her name is Dolores and she saved his life in my eyes. By the end of the week, we had a diagnosis and were placed in the hospital.
He is in the protocol for standard high-risk ALL and has been in an experimental study as well. We have spent a lot of time in the hospital, somewhere around 85 days inpatient by mid-August. We are currently inpatient until then for a month’s stay. Keeping up with medical bills and additional expenses has been trying. We have a high DED plan so we have owed a lot since he was diagnosed end of last year and our DED started again in January.
We have been self-isolating still so we spend a lot of time at home. While many people are moving past COVID we are still in the thick of germ mitigation and being careful of exposures. We do try to find ways to have fun and enjoy things we can. We take more walks and try to keep a good balance of free time in our schedule.
Deklyn shows that he can try to overcome many obstacles. He was born with some birth defects and medical issues outside of Leukemia now and has always been a brave and powerful boy!
Hope session by Lindsay Chan Photography | Facebook | Instagram