Declan is a spunky, rambunctious, free spirit. He loves art, puzzles, sprinklers, and water (we have an in-ground pool). He enjoys all things, Disney. He loves to run and jump. Loves music. He lives Fight Song. He loves dressing up as Elsa from frozen, or any superhero. Loves bikes and Kermit the frog.
Last year, Declan started having seizures. He had one day, and he quickly started having seizures up to 8 times a day. He was brought into Boston Children’s Hospital Emergency Room and less than 24 hours later we were slammed with the
news that our son had an inoperable brain tumor.
Although it is considered benign, it has grown to show unwanted symptoms. We know that the tumor can not be removed due to its complexity and it would leave him functionless. This is very very rare for a 3-year-old. It has peaked interest in many neurologists and neurosurgeons, and they are teaming up together to figure out what it is and a solid plan of action, but back up plans as well.
He is getting chemotherapy, as well as being worked up for seizure surgery. At 4 years old, this is a lot to handle. He also has albinism which causes low vision.
We are strong and have proven to get through challenges in the past. Declan is a strong rock star who is gonna kick this thing’s butt!
Hope session by Cheryl Cagle Photography | Facebook | Instagram