Charlie had all the typical symptoms of leukemia (skin discoloration, frequent illness, nausea, vomiting, weight loss, irritability), but one of the worst was all the sleeping. He would nap at splash pads and places where he should have been having fun. He also started limping.
Cancer limits us a lot through neutropenia and infection risks, but he also did 60 days of constant port access where he couldn’t swim or even take a bath.
We had to move states to get treatment for him. We quit jobs, sold our business, quit my PhD program, and started over. We were split for a few months while we made this move and have had to build a new community all while battling this disease. We have three other kids and at diagnosis, my youngest had just turned 1, so we are all incredibly burnt out and trying to rebuild our family life.
Hope session by Grace Margritz Photography | Instagram