Caleb is goofy and loves to make people laugh! Loves playing outside, Batman, anything Disney, cars, and trains.

Caleb was at his four year well child check and we found a lump on his abdomen. It felt like a golf ball under his skin. We figured he was constipated and started him on miralax and did an X-ray. The X-ray showed what looks like a big ball of poop. Two days later he had a 104 fever and was throwing up uncontrollably so we rushed him to children’s. At children’s they did another X-ray and said it’s just poop. They were going to send him home but I said I wanted more tests done. I had that feeling in the pit of my stomach. An ultrasound showed blood going to the “poop ball” so we did a extensive ultrasound and ct and finally learned it was a tumor the size of a grapefruit. He had Rybdomayosarcoma. 

Caleb’s has been getting chemo weekly since October and will continue until mid August. He also has had 33 days of proton radiation to his pelvis and will have ten days of X-ray radiation to his right lung. Caleb doesn’t get sick very often. Thankfully, he still has lots energy. He does have issues walking because of the chemo.
Honestly our life has been a crazy roller coaster of emotions since that week we found his tumor but life has continued on. Not much has changed besides spending more time having fun and less time worrying about the small things. We’ve tried our best not to let this change our daily lives. I honestly feel like our family is closer because of all of this. Our faith in God is what is keeping us moving.

 

Caleb’s support group

Hope session by KRK Studios and Rentals | Facebook | Instagram

Share This