Austin is on the go! He loves to run and play hide and go seek. He is a fun loving, sweet, baby blue eyed boy who gives so much love and teaches us about life. We call him our baby boss but really, he is our little hero.
On June 6th of 2017, Austin was diagnosed with Craniopharngioma. Austin had always been a very fussy baby and had never slept well. Leading up to his diagnosis, his head circumference kept growing and climbed off the charts. He had an ultrasound and it showed an enlarged 3rd ventricle. While we were in limbo waiting for our neurology appointment; one night Austin’s eyes rolled to the back of his head and he started vomiting. I knew then that something was not right. We took an ambulance ride, 3 hours away, to the University of Iowa hospital and they did an MRI. That’s when we got the news, “your son has a brain tumor”.
Austin had surgery that June to biopsy the tumor and drain the cystic part of the tumor. We are now at St. Jude’s and he is on his 22nd proton radiation treatment. We have left our three other kids back in Iowa and it has been very hard being away from them, our families, jobs, and our normal life.
The way we look at life now is very different. It’s not about things, it’s about moments in time.
These are awesome! So adorable!!
Sending continued thoughts, prayers & good vibes your way!!