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Addi was a very small baby. The doctor always said she had failure to thrive and said she couldn’t poop. After fighting with the doctor for a treatment plan for that, Addi then begin to stop eating, She got nose bleeds constantly and stopped walking. I took her to the children’s ER and they said there were signs of infection in her blood. This led them into thinking she had arthritis. We saw a specialist for that and that doctor said she did not have arthritis. So we were back at square one.

They ended up discharging her and said we just needed to follow up with her pediatrician. Then Addi had a big lump show up on her neck. I took her to the pediatrician who then told us she just had a swollen lymph node and sent her home. She just kept getting worse and worse as the days went by. We took her to see the oncology team and they did blood work and her CBC came back abnormal. They tested her for different types of blood cancers and those came back negative. We were back to square one, once again.

Two weeks later, Addi wouldn’t wake up. I rushed her to the doctor’s office, where she saw a new pediatrician, and she walked in, looked at Addi, and said “I will be right back. I’m calling the hospital and letting them know you are on your way, Don’t leave until you have answers.” That’s when our world got dark and scary.

We got to the ER and they did an X-ray where they saw an abnormal shadow. Then they did a ct scan and that’s where they saw all Addi’s masses. They admitted her right away and ran more tests. A few days later, they confirmed our worst nightmare, our sweet 2-year-old has stage 4 high-risk neuroblastoma.

They proceeded to tell us that there is a high chance we would lose our sweet girl. They started treatment to give her a fighting chance. The nurse told us that she was the worst case they’ve seen.

Addi went through 2 1/2 years of treatment. She beat all the odds. After two years of fighting with the pediatrician to figure out what was wrong with her, the doctor misdiagnosed her, and not caring if Addi was getting better – we got our baby girl on the right track.

Addi still has 5 masses left and is currently being monitored. She is thriving and doing great!

In October 2020, I had another baby girl and she got diagnosed with neuroblastoma as well. Thankfully they were able to do surgery to remove hers and she’s in remission. Addi unfortunately isn’t in remission yet.

Addi’s support page

Hope session by Erica Finnan Photography | Facebook | Instagram

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