Our sweet little Addie was diagnosed with DIPG on Feb. 17th, 2021, just days before her first sister was due to arrive. At 8 years old, Addie was active and lively, while also still very shy. Within two weeks of symptoms, she was unable to walk, feed herself or use the bathroom.
Addie has completed 6 weeks of radiation and has gained back a lot of her functions. She is also starting a clinical trial soon and we are praying this continues to help her until DIPG has a cure.
The hardest part of Addie’s diagnosis for us has been the stress it causes on our family. Addie lives in Oklahoma with her mom and I live in Washington with my wife and three other kids. We visit Addie once a month for a week. I think the hardest part for Addie is the loss of her ability to do her favorite things like art, gymnastics, and play with animals.
Hope session by Kara Chappell Photography | Facebook | Instagram