Abram was diagnosed on January 7, 2020. He started struggling with constipation, then began having severe leg and back, and neck pain. After continuing to go to the doctor numerous times for all of the pains, with no clear reason what was happening, we eventually ended up in the ER with fever and severe back pain one day, which led to a CT scan and being diagnosed.
He had done 5 rounds of chemo, one tumor recession, two stem cell transplants, and we currently are doing radiation along with chemo. His currie score started at a 19 when diagnosed, and is currently at a 12. As a result, our next step will be to do immunotherapy and chemo combined after we finish radiation. We are very much still in the battle but he is a fighter.
Abram lives with both parents and has three younger siblings: Ezra (brother, 6), Jubilee (sister, 4), and Eli (brother, 3). This year, we have had to lean heavily on our extended family in order to function. Thankfully, Abram has amazing grandparents who have given up so much to help us with the other kiddos, and Abram to get through this season. On top of just the cancer diagnosis, Covid has made this season especially hard. Abram is so close to his siblings and they are not allowed to visit him when he is admitted to the hospital. When Abram did tandem transplants he did not get to see his siblings and his dad (mom and grandma rotated at the hospital bc dad had to work and they only allow 2 caregivers), for 28 days each time…. so 56 days total Abram lived at the hospital this summer missing his daddy, brothers, and sister. It’s crazy hard, but we are surrounded by amazing family and friends who help carry us and a God who loves us.
He’s amazing, and such a special kid. He’s been through more than any 7-year-old should, and yet he still can laugh and play. I’m so proud of him.
Hope session by Jana Zerpoli Photography | Facebook | Instagram