Ari-Anna was diagnosed with Wilm’s Tumor Stage 3, on March 28, 2013 at age 3. She had surgery on April 1st. to remove her right kidney, which was attach to the tumor and surrounding tissue. The tumor also attached itself to the Vena Cava Artery which needed surgery to repair as well. Her only complaint was “I want to go home”. She is home, recovering. She started Chemotherapy and Radiation Therapy 5 months ago and she is still smiling and undergoing chemotherapy.
Hope Session by Buatti-Ramos Photography. website | facebook
Emaleigh was diagnosed with an extremely rare congenital overgrowth disorder in 4/2010 called CLOVES Syndrome. Her condition has caused significant tumors in her lower body, very thin upper body, overgrown bones in her feet, leg length discrepancy, and large veins. Because of the overgrowth condition, she was at a 7% higher risk for developing Wilms Tumor, so recommended scans were performed every 3 months. Every scan we noticed a change in her left kidney, it was more than double the size of her right kidney, she had small classifications, and the wall of the kidney was very dense. After a bilateral foot amputation (metatarsal), during our routine Ultrasound, we noticed that two tumors formed in the left kidney. After the MRI and biopsy, she was diagnosed with bilateral Wilms Tumor (the first CLOVES patient) on 12/27/11. After 6+ months of Chemotherapy and a left nephrectomy, she is now cancer free and has been for 7 months.
