Meet Cash – Hepatoblastoma

Meet Cash – Hepatoblastoma

Cash and his twin brother, Camden were born on Dec 5, 2015 at 33 weeks. Their first few weeks of life were rough, but they are tough little boys. On July 8th, 2016, at 7 months old, Cash woke up unusually fussy. We called his primary doctor and couldn’t get in for a week.

On a whim, we decided to call another doctor to get him checked out. We took him in and she did an xray. Not liking what she saw, but not really knowing what it was, she sent us 45 minutes away to a children’s hospital. They did an ultrasound and then put us in a private room. It was after they started giving our other 3 children snacks, crayons and toys that we knew something wasnt right. We thought maybe a hernia since he has had an umbilical one since birth. The doctor came in and said they saw a mass on his liver and it had ruptured. At that moment, we knew our life was going to change.

After his diagnosis of hepatoblastoma, they scheduled his liver resection for three days later. The resection went well and all seemed good. He was on the mend, with some chemo rounds in his near future. One week later, his drain tube had become loose and all the drainage was leaking into his abdomen cavity and his blood stream. The next day he went into septic shock and we were told the outcome was not good. He had ecoli in his blood, as well as other infections from the drain tube becoming loose. He was placed on life support and remained on it for over a week and a half. We were literally watching our baby die.

Miraculously,  a week and a half later, our sweet boy was tested by taking him off the support and was breathing on his own. It took about a month to wean him off all the pain meds he was taking and it was touch and go. A month later, our sweet boy was able to go home with us, but was to remain on tube feedings throughout the day and night. His first chemo treatment was the last few days of his hospital stay and every other week. He completed numerous  rounds of chemo, and finished his last one in late November. After many months of weekly testing his AFP, he got to ring his “no more chemo” victory bell, on March 10th, 2017, which is also his older sisters birthday. As of today, he is NED. Praise God.  He has had no problems catching up with his twin brother and is now walking and starting to talk. He is our little warrior. Our true hero.

Hope session by Sun Tea Photography| Facebook

Meet Hadley – Hepatoblastoma

Meet Hadley – Hepatoblastoma

Hadley’s cancer journey started on 2-3-15. We felt a lump in her belly and new something was not right. We heard the words “It’s not good, it’s cancer” that night. Never have I ever imagined this would happen to her. She started chemo right away and lost her hair in a few short weeks. She spent 37 days in a hospital bed lifeless. They told us that she might need a liver transplant because the cancer was in the main vein of Hadley’s liver. She did two rounds of a trail chemo and her tumor did not respond how they wanted it to. Once she started the standard chemo her tumor started to respond and shrink and most of her lung mets disappeared. Her medical staff said that they were able to save her liver and remove the mass. The tumor on her liver shrunk over 75% by the time they did the surgery to remove the mass. During her surgery her surgeon successfully removed 50% of Hadley’s liver but the vein the cancer was in caused some trouble. The cancer was completed compacted in her vena cava and he was unable to remove it so he removed her right jugular vein, the only vein that is around the same width as the vena cava, and grafted it to the section of the vena cava that he removed. She did wonderfully through the surgery and during her recovery. She will be on a blood thinner the rest of her life because the jugular vein isn’t as thick as the vena cava and if a blood clot were to form it would be instant death for her. On 8-13-15, a day before she turned 3, we got the wonderful news that she is in remission! She is the strongest child I have ever met and we are so proud of her fighter spirit!

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Hadley’s support page 

Hope session by Jessica K. Huff Photography. website |  facebook

 

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