On July 18th, 2011 our sweet baby girl Violet was diagnosed with Retinoblastoma, a very rare form of pediatric cancer that develops in the retinas of the eyes.
Violet has gone through CT scans, MRIs, surgeries, having a port-a-cath, blood draws, injections, chemotherapy, exams under anesthesia (EUA) and more. All of this began for her at just 7 months old.
After genetic testing, it was found that Violet has the RB1 gene. This means that not only is she susceptible to tumors occurring in her eyes, but she also has a higher probability of tumors occurring in other parts of the body throughout her life.
Violet was also found to have a small deletion in chromosome 13. This deletion is known to cause many issues including growth and developmental delays, autism, retardation, low muscle tone, kidney failure, seizures, blood clotting, sensory processing disorder and more. Violet is showing none of these! Praise God!
Violet completed active treatment in 2012 and is in remission! She continues to be monitored with Exams Under Anesthesia (EUA), labs and Oncology follow ups every 12 weeks at Seattle Children’s Hospital.