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Jaxson is one of the happiest little boys that I have ever met. He is always playing, laughing, and running wild like a typical (almost) 2 year old little boy. He has grown used to the hospital lifestyle. He loves his nurses and playing with the friends he has made that are going through similar situations. Outside of the hospital, Jaxson loves the outdoors. He loves animals, especially dogs and cats. Jaxson also loves music and anything that has water to play in. 

Jaxson had low platelets at birth. After testing for many different conditions, Jaxson was diagnosed with Myelodysplastic Syndrome (MDS) at 18 months old. He was scheduled for a bone marrow transplant at the end of January. Unfortunately, his bone marrow biopsy right before transplant showed that the MDS had turned into Acute Myeloid Leukemia (AML). He was diagnosed with AML at 20 months old. 

In January, he had his central line placed and had his first round of chemo. He spent 10 days on chemo and 34 total days in the hospital. Jaxson went into remission after the first round of chemo! He had another round of chemo in March as a preventative measure while his donor was preparing to donate for transplant. He spent 8 days on chemo and 26 days in the hospital. Jaxson is getting to spend 4 weeks at home. We will be admitted to the hospital again at the end of April to start chemo, and Jaxson will have his bone marrow transplant in the spring.

Jaxson’s MDS has played a role in our lives since the day he was born. It was still a huge shock when we learned that it progressed into AML even though our doctors had warned us that this could happen. I had to take a leave of absence from teaching to care for Jaxson during his treatments. It can be trying, because my husband and family are an hour and a half away from the hospital, but we have an amazing support system to help us. Jaxson is a fighter. He has gone through this at such a young age, but he has taken every step so far like a champion.  

Hope session by Crystal Freemon Photography | Facebook | Instagram

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