Meet Brady – Neuroblastoma

Brady is an energetic four-year-old who was diagnosed with Stage 4 Neuroblastoma in August 2012. We got to spend a super fun morning at Fenway Park, and Brady even got to run the bases! Aside from the Red Sox, Brady also loves trains (CSX ones, to be specific. Go big, or go home, right?), John Deere, Mickey Mouse, and the New England Patriots.

In the last year, Brady has undergone six cycles of chemo, several MIBG scans, CT scans, bone marrow biopsies and received multiple blood & platelet transfusions. There have also been several inpatient stays due to fever and neutropenia. The tumor and his left adrenal gland were been removed on 11/29/2012. Several tests and scans were complete in January in preparation for Stem Cell Transplant. However, the MIBG scan at that time showed 4 spots remained on his bone (1 on each thigh, 1 on the right lower leg & another on the left upper arm). We were advised that it is best to go into stem cell transplant with the least amount of Neuroblastoma. His doctors decided the next best step was MIBG therapy (basically radiation that is injected into his central line and only targets the Neuroblastoma). MIBG therapy was complete in January 2013. In March 2013, he underwent aStem Cell Transplant which involved high dose chemo and an impatient stay of approximately 4 weeks; he received his transplant on 3/19/2013. He completed 12 sessions of radiation therapy (last session was on 5/14/2013). His most recent bone marrow biopsy in June came back negative for Neuroblastoma! MIBG scans post MIBG therapy and in May showed only 3 of the 4 spots remained on his bone. On 6/17/2013 he began ch14.18 Antibody Therapy. He completed 100 days of isolation post stem cell transplant on 6/27/2013. The most recent MIBG scan was clear! He is finishing up antibody therapy and will have end of protocol scans during the first week of December.

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Brady’s fighter page : Brady’s Mission

Hope Session by Melissa Van Ruiten Photography.  website |  facebook

 

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